Health

Strengthen humanistic care and dispel the shadow of shame and illness

2025-01-06   

In the vast world of medicine, the "shame of illness" is like a hidden haze, silently eroding the spiritual world of patients. Shame of illness "is a complex psychological phenomenon, mainly referring to the sense of shame that patients experience due to suffering from a certain disease. The sense of shame towards illness has a profound and subtle impact on the patient population at different levels. Firstly, in terms of self-awareness, patients may have negative self perceptions about their own illness. For example, patients with depression may refuse to take psychiatric medications due to a sense of shame about their illness, leading to serious consequences. They often think that their emotional problems are a sign of weakness and should not occur, leading to a sense of shame. Secondly, in terms of the influence of social attitudes, people may have biases and discrimination against certain diseases, which can exacerbate patients' sense of shame. Taking infectious diseases as an example, the society may misunderstand AIDS patients, which makes AIDS patients bear great psychological pressure when facing the society and produce a "sense of shame". Thirdly, in terms of the impact on daily life, "shame of illness" can cause patients to withdraw from social life. Patients with chronic diseases such as kidney failure who require regular dialysis may reduce their social activities due to concerns that others may look at them differently when they learn about their condition. They are afraid of being sympathized or despised by friends and colleagues, gradually isolating themselves from society. I once met a young patient with hepatitis B. In the narrow space of the ward, he was like an injured chick, carefully avoiding the gaze of others and refusing anyone's visits except for his close family members. Even normal diagnosis and treatment operations carried out by medical staff can trigger strong resistance from him. The patient is afraid of being discriminated against by the strange looks of others and worries that their originally limitless future will be completely destroyed by this ruthless disease. Therefore, 'shame of illness' is not only a personal struggle of patients, but also a profound reflection of the challenges faced by the entire medical industry in the dimension of humanistic care, as well as the responsibilities and missions that should be shouldered. How to better help patients achieve inner peace, guide the public to view diseases and patients correctly, reduce fear, anxiety, and resistance, and enable them to receive fair, just, and friendly treatment is a goal that requires efforts to be made. In this regard, we have actively explored and practiced. For example, in the oncology department, many patients involuntarily fall into deep self doubt at the moment of being diagnosed with cancer. They firmly believe deep down that they have become a heavy burden on their family, filled with despair and helplessness for the future. In addition to providing professional medical care to patients, experienced nursing teams often carefully arrange psychological counseling and aromatherapy for patients, allowing them to receive professional psychological counseling and treatment in a peaceful and fragrant environment. At the same time, a variety of colorful small activities will be organized, allowing patients to handwrite the word "fu", cut window decorations, and do handicrafts together during treatment, and talk about their life insights. In the creation of the ward environment, we have also abandoned the traditional hospital's cold, monotonous, and oppressive layout style, and replaced it with warm and pleasant decorative paintings. Colorful, vibrant, and hopeful paintings seem to silently express the resilience and beauty of life; Placing vibrant green plants injects a continuous stream of vitality into this small space, allowing patients to feel the vigorous power and warm comfort of life unconsciously. In addition, in psychiatry, a series of warm humanistic care measures are usually developed and implemented to address the phenomenon of "shame of illness". They specialize in creating warm and private one-on-one treatment spaces for patients, fully respecting and protecting their privacy in terms of environmental settings. At the same time, actively participating in community mental health knowledge popularization public welfare activities, through holding rich and diverse community lectures, health consultations, and public welfare propaganda activities, to promote the causes, symptoms, and modern medicine's significant achievements and high cure in the treatment of mental illnesses to the general public in a simple and understandable way, correcting the long-standing misconceptions and prejudices of the general public towards mental illness patients. In the future, we will pay more attention to the construction of medical humanities. Through measures such as improving the medical environment, optimizing the diagnosis and treatment process, and strengthening psychological support, we will provide patients with more humane medical services, gradually forming a strong atmosphere of medical humanities. Let the brilliance of medical humanities truly illuminate the depths of every patient's soul, so that they will no longer be lonely or troubled by the haze of "disease shame" on the thorny road of tenacious struggle against diseases. At the same time, we will actively unite forces from all sectors of society, widely disseminate correct disease awareness and medical concepts, closely cooperate with community organizations to carry out diverse forms of health public welfare activities, comprehensively and deeply carry out disease knowledge propaganda and education activities, gradually eliminate social discrimination and prejudice against various diseases with scientific knowledge, real cases and warm stories, reshape the public's understanding and tolerance of patient groups, and steadily move towards the goal of building a more harmonious doctor-patient relationship and improving the health and well-being of the whole nation. (New Press) (The author is the Director of the Office of Doctor Patient Relationship Coordination at Beijing You'an Hospital Affiliated to Capital Medical University)

Edit:Chen Jie Responsible editor:Li Ling

Source:People's Daily

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